Hello You 47: 'I'm making the most of what I have'

Hello You with Jim Hawkins

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Hello You 47: 'I'm making the most of what I have'

Shropshire's Nick Deane talks about life with motor neurone disease

Jim Hawkins

Jun 14, 2024

Transcript

How do you life your life, when you don’t know how much life you have left to live?

Last spring, Nick Deane - a previously fit and active fifty-something, a Parkrun stalwart and a member of the Shropshire Shufflers - experienced the first symptoms of motor neurone disease.

In this episode of Hello You, Nick tells his story, and shares his thoughts about living with an incurable condition for which there is no treatment. He talks about how he was diagnosed, the support he’s had from the NHS, and about his amazing fundraising efforts for the Motor Neurone Disease Association. Can you help him crack £50,000?

Find Nick Deane on X/Twitter and Instagram.

Also in this episode:

avoiding the news, and avoiding news about the news
have you been diagnosed with autism in mid-life?
Exploitation Drive-In Movie or Local News Headline?

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And if, like Nick, you have a story you want to tell, or there’s something else you’d like to talk about, an event I could come to, an issue we could discuss (local or national) or if you just want to say hi, message me?

Hello You 48 will be with you on Monday. It’s a Bench recorded at Mumma’s Emporium in Shrewsbury. It’s fun, joyful, informative, surprising and a bit weird. Subscribe so you don’t miss it, or any future episodes:

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Discussion about this podcast

Hello You with Jim Hawkins

I’m trying to give you something a little different. Hello You is about stuff, and things. People, and stories. Shrewsbury, and Shropshire. Mental health and well-being. History and heritage. Arts, culture and music. Faith, belief and the complexities of life.

I’m a good listener. It’s what I do. And for Hello You, I’m listening to (and talking with) fascinating people, mostly but not always from Shropshire, so that you can hear what they have to say.

It's public-service local journalism that cares about people. Audio that brings you the voices of people you might not hear from otherwise. Interviews conducted with compassion and empathy. Thoughtful, positive, good-humoured conversations, informed local storytelling, and commentary that’s not afraid to get righteously angry on occasion.

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